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Muscle Disease from Metal Implants

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Amputation?!?!

Monday, March 3rd, 2014 | Types of Metals | No Comments

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Recently I was told a lady in PA had repeated gone to her orthopaedic surgeon due to pain, soreness, over all fatigue, as lifelessness crept into her body over an extended period of time. Dire health issues stemmed after her knee replacement. She did not recall having any health issues prior to her Nickel-Cobalt-Chromium knee replacement.

The lady said her leg was starting to swell with a nasty rash and the pain was unbearable. Instead of the orthopaedic surgeon checking to see if the types of metal were the core issue of her declining health, he refused to do a knee revision. He did not believe the patient’s health issues were directly related to a severely infected knee after her replacement.

Her knee infection became so bad… the orthopaedic surgeon, in his professional opinion, instructed her that he was going to have to amputate her leg.

I have “repeatedly” stated Steel Standing’s support for physicians in attempts to share metal allergy stories directly related to joint replacements to help “educate” others.

This story absolutely broke my heart!!!

NOT everyone will experience metal allergies from surgical implants such as joint replacements, dental implants, plates, screws, wires, pacemakers, etc. But what if someone you loved WAS allergic to a metal implanted into their body and they slowly began to lose their quality of life/health? Based on personal experience, I would EVERY thing possible to help my Mother and she recovered! I pray everyone can recover.

PLEASE become more acutely aware of what is happening with metal allergy issues! Share information.

I did not read her medical file, nor am I a clinician. I can’t reveal any more information. But here are the facts shared: She had a TKR (Total Knee Replacement) with the same metals that were slowly draining my Mother’s life. She did not have any other health issues until she had a knee replacement. This lady lost a leg just above her knee although she repeatedly pleaded for help. Perhaps a second opinion was in order, but when people “trust” their doctors and are adamantly devoted to them, you pray their doctor knows best!

I didn’t ask if she had sought a second opinion. I was speechless and deeply saddened for her outcome.

Could her knee have been saved in this day and age of technology, testing and better monitoring as she expressed repeated pleas with pain and suffering?

C. Davis

Author of Steel Standing

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Out the ROOF Allergy to Nickel Results!

Friday, November 22nd, 2013 | Health Care In General, Inflammatory Myopathy, Types of Metals | No Comments

Where can a patient turn to when in need of a revision or a removal, due to potential metal allergies from: knee replacement; hip replacement; metal plate and screws; dental posts; rods used in spines; surgical clips; pacemakers; and many other metal implants? To find an answer is a daunting task!

NOT EVERYONE IS ALLERGIC TO THEIR METAL IMPLANTS.

But what about those that are?!?

Based the feedback from so many patients, we find appalling how many people are suffering from metal implants. I began writing Steel Standing to share my mom’s story as we learned her health troubles were stemming from her metal joint replacements. It became a mystery flipped to a medical breakthrough!

Soon, a web site was needed to help promote the book, share our ongoing presentations and now we are advocating for others in need.

Patient’s Doctor Dismisses Metal Allergy Testing Results!

A patient named Tina has a metal rod made from alloys such as Cobalt-Chromium-Nickel which was surgically attached to her spine. She lives in Utah and has not been successful in her many attempts to get a medical doctor of any specialty to listen to her ailments. 

Tina shared with me, ”The doctors are all at a loss. When I accidentally discovered your web site while searching for any clues what might be wrong with me, I realized after reading your mom’s story my health problems may be to be metal related. There is nothing else that could be causing so much pain and weakness with extreme fatigue.  What’s more important is that I did not have any of these crazy symptoms until after the metal rod was placed in my spine. It has gradually decreased my health. I’m only 37 years old.”

Tina contacted me through our web site seeking my advise based on being my mom’s experience and discovering a wealth of metal information regarding metal inserts/implants in the United Kingdom. She has repeatedly met with her orthopedic surgeon, begging for him to remove the rod since she said it is no longer needed. The orthopaedic surgeon continues to refuse to listen to her. Tina has also been unsuccessful to get another orthopaedic surgeon that specializes in spinal rods since the doctors in her area belong to the same medical network.

Her next decision was to have a M.E.L.I.S.A. blood allergy test to see if any of the types of metals in her rod could be causing an allergic reaction. Her report was shocking! I could not believe her orthopaedic surgeon did not attempt to help his patient when he saw the M.E.L.I.S.A. report! Nickel (as shown below) is “off the charts” at 13.7 in addition to other mild metal allergies.

 Tina's MELISA Test Illustration

 (Click on photo for larger view)

Now, look at Mom’s M.E.L.I.S.A. Report.

 PDH MELISA REPORT FOR WEB

 (Click on photo for larger view)

Tina’s Nickel Allergy Results: 13.7 

Mom’s Nickel Allergy Results: 3.1

In reviewing the chart/timeline I created below to illustrate my mom’s journey with Cobalt-Chromium-Nickel with Nickel being one of the HIGHEST of her metal allergies. It is amazing my mom survived with only 3.1 positive.

 Steel Standing Graph

 (Click on photo for larger view)

This was story was first shared on November 10, 2013.

This blog post was updated on November 22, 2013.

Nothing has been done due to health insurance conflicts.

-Christa, Author of Steel Standing

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FDA Orthopaedic and Rehabilitation Devices Panel of the Medical Devices Advisory Committee Meeting Announcement

Sunday, November 10th, 2013 | Uncategorized | No Comments

FDA STILL DOESN’T GET IT! “TYPES OF METALS” is the correct answer!

(This is part of the long FDA announcement and meeting notes.)

Agenda: On December 12, 2013, during Session I, the committee will discuss and make reco…mmendations regarding the classification of spinal sphere devices. These devices are spheres manufactured from metallic (e.g., cobalt chromium molybdenum) or polymeric (e.g., polyetheretherketone) materials. They are intended to be inserted between the vertebral bodies into the disc space from L3-S1 to help provide stabilization and to help promote intervertebral body fusion. During the arthrodesis procedure, they are to be used with bone graft. These devices are not intended for use in motion-sparing, non-fusion procedures.

PLEASE NOTE the types of metals they are going to “suggest (dictate?)” for orthopaedic surgeons to place in the spine!

“Cobalt, Chromium and Molybdenum”

Chromium and Molybdenum are only 1 element away from being twins! That means double the trouble for metal inserts, especially in the spine area! Those types of metals almost destroyed my mom’s kidneys. Beware of what types of metals are placed in your body.

Chromium causes renal and digestive failure. Google it! Learn and share, please! The photo below is my mom’s left hip after her third revision with repeated metals of Cobalt-Chromium-Nickel.

Also, note: Approximately 30 percent (varies with dermatologists) of the general population are allergic to Nickel.

WHY USE Cobalt, Chromium and Molybdenum metals? Because ortho mfgs can make a boat load of money on inexpensive hardware that is an alloy and not pure! Guess that’s how they make their billions.

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Total Joint Replacement: What to ask?

Tuesday, November 5th, 2013 | Health Care In General, Inflammatory Myopathy, Types of Metals | No Comments

The following hyperlink will carry you to an AAOS site with good questions. http://orthoinfo.aaos.org/topic.cfm?topic=A00375

But there are some questions missing you might want to include in your list.

Does or did your orthopedic surgeon or dentist ask if you were allergic to metal, any types of metals? Known what metals are being placed in your body. This web site is constantly getting emails from those who already have metal implants, relate to the symptom as shared with my mother’s case, then recognize they are experiencing the same. ONLY then does it seem a patient will listen or ask question before allowing any type of metal placed in their body.

Please note: Not everyone is sensitive to metals! But what if you are one of the ones that are sensitive to Nickel? Cobalt? Chromium in metal implants should be marked off everyone’s list! It causes renal and digestive failure EVEN if you are NOT allergic to Chromium. Google the facts!

Patch testing is being referred to a great deal lately as shared by many of our followers. It seems most orthopedic surgeons are advising their patients to have a patch test which is a skin test with metals placed on your body for three days. Then if there are any red marks where the metal piece was placed, the dermatologists declares you have a metal allergy to that type of metal.

How is it possible for a skin/patch test to be more accurate than a blood test that will capture the blood culture which circulates where the metal implants are located?

It baffles me to hear orthopedic surgeons and dermatologists claiming patch testing is the end all, answer all to detecting metal allergies!

I’m not a clinician, but I witnessed my mother’s patch test, which her dermatologist allowed. Her patch test was too vague. That’s when we were referred to a MELISA blood allergy test. I saw the results from her MELISA test! It was definitive and clear cut. There was not any reason to doubt her blood allergy test results from an appropriate lab that is credible.

When a patient is told a blood allergy test is not credible, ask your doctor check his/her sources. Share the web site of that lab! Become educated and informed.

With all due respect, medical doctors appear leery of metal allergy blood testing. Why, I have to wonder. Is there a hidden agenda or is it because patients are complaining to doctors that are missing the connection to unrelated health issues caused by metal implants creating failed health over sometimes “a gradual amount of time” and others quickly discover failing health which directs links back to when the metal implant was surgically placed in the body.

It’s your body. It’s your health. Respect your doctors. However, don’t be afraid to get additional opinions. Do your homework!

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Questions to Ask Your Medical Provider

Thursday, September 12th, 2013 | Health Care In General, Types of Metals | No Comments

 

Be prepared before your next physician visit. Ask questions. Learn more about your health and your habits to better communicate with your medical provider!Web Site Ask Questions Clip Art copy

The Agency for Healthcare Research and Quality (AHRQ) provides the following list of 10 important questions to ask your medical provider.

 

 

 

 

 

    1. What is the test for?
    2. How many times have you done this?
    3. When will I get the results?
    4. Why do I need this surgery? (IF this is a metal implant, ask what types of metals will be used and request a metal allergy test.  An LTT or MELISA  lab tests are the ONLY tests widely known to test for ALL types of metals surgically used in today’s market.)
    5. Are there any alternatives to surgery?
    6. What are the possible complications?
    7. Which hospital is best for my needs?
    8. How do you spell the name of that drug?
    9. Are there any side effects?
    10. Will this medicine interact with medicines that I’m already taking?

Source: Baylor Health Care System, www.baylorhealth.com

 

 

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Rick Bragg Pulitzer Prize-winning Writer Shares Insight

Monday, August 12th, 2013 | Uncategorized | No Comments

What an honor to meet Rick Bragg! He shared some insightful advice, encouragement and support for the new medical edition Steel Standing: Surviving Metal Allergies, available now on Amazon. 

Rick Bragg and Chris at JSURick is a Pulitzer Prize-winning writer and JSU Alumnae. He was the JSU Summer Graduation commencement speaker on August 2, 2013. While Rick was in the area, I was honored to meet with him at the President’s Reception. He was extremely supportive and encouraging, sharing tremendous insight into the writing industry.

He is a 1992 Harvard University Nieman Fellow, former New York Times correspondent, Bragg has authored five books: All Over But the Shoutin’, Ava’s Man, The Prince of Frogtown, I Am a Soldier, Too: The Jessica Lynch Story, and The Most They Ever Had.

In addition to the Pulitzer Prize for feature writing, Rick has received more than 50 writing awards in twenty years, including the American Society of Newspaper Editors Distinguished Writing Award, the 2009 Harper Lee Award for Alabama’s Distinguished Writer of the Year, the 2011 James Beard Journalism Award for Food, Culture, and Travel and the 2013 Alabama Artist of the Year.

He currently teaches advanced magazine writing and narrative non-fiction in the journalism department at the University of Alabama.

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We didn’t know about metal in joint replacements? Did you?

Tuesday, July 23rd, 2013 | Inflammatory Myopathy, Types of Metals | No Comments

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No clue?!? Progress Prevails

Thursday, July 18th, 2013 | Inflammatory Myopathy, Types of Metals | No Comments

When I began conducting my own research, no one had a clue what could possibly be my mother’s culprit. Patricia’s odd symptoms were all over the board. She didn’t “fit” into a normal case of anything. No signs indicated a clear direction what was the cause of her health decline as her body became increasing worse.

After a muscle biopsy, she was diagnosed with Inflammatory Myopathy – thought to be ALS, also known as Lou Gehrig’s disease.  Mom was given “no hope” without any clues how myopathy could have developed in a healthy, vibrant and energetic woman.

Her medical history had been healthy for 68 years. She didn’t smoke, drink alcoholic beverages, and did not take illegal medications. She had never been exposed to environmental hazards while working for a power company. Literally, there weren’t any clues, signs or symptoms what was happening to her body.

Currently, Patricia is at 95 percent mobility and quality of life compared to a previous 30 percent with failing health. No one would have ever believed her muscle tissue would be able to regrow and she could regain her physical strength  – a first in the United States!

My speaking schedule has become increasingly busier since we have been sharing an awareness of the potential dangers of metal allergies. Physicians are also listening to become aware of odd symptoms in their patients with metal implants.

What was considered “no hope” with “no clues” is shifting towards an incredible progressive pace.

Lee and Trish

Dr. Lee Cowden, Chairman of the Academy of Comprehensive Integrative Medicine’s Scientific Advisory Board, discusses Patricia’s miraculous rebound from metal allergies which created a side effect of Inflammatory Myopathy.

 

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Dallas Med Conference: Encouraging!

Friday, July 12th, 2013 | Faith, Inflammatory Myopathy, Types of Metals | No Comments

It was indeed an incredible honor to be invited as a guest speaker for a medical conference, In sharing the clinical outcomes and progress of Patricia’s medical mystery to medical breakthrough with physicians and clinicians, I was amazed at their eagerness to learn more to help their patients, if similar symptoms prevailed.

I felt right at home speaking with medical practitioners and guests wanting to know more information. Health care communications has always been my passion and a large part of my professional experience as a medical marketing manager for many years was working with all levels of the medical community.

Dallas was an exciting time for me on a very personal level. I really enjoyed my time in Texas!

Christa Presents at ACIM MEdical Conference in Dallas, TX

Christa Presents Steel Standing Clinical Revelations at ACIM Medical Conference in Dallas, TX

The overwhelming reception from those attending was far greater than I anticipated. Metal allergies are real, and the practitioners were eager to learn more details about my mother’s case specifics.

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Through this web site and other venues, patients and caregivers have shared repeatedly their efforts in seeking help in locating a physician that will: 1) listen to their symptoms 2) believe metal allergies are real and possibly could be the patient’s core health problem; and 3) work with the patient and order an allergy test (patch or blood).

Don’t give up hope! I met some wonderful physicians that are listening and supportive of their patients and the possibilities of metal allergies being the core health problem.

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“What Should I Do?” Asked “Dr. Doubter”

Wednesday, July 10th, 2013 | Inflammatory Myopathy, Types of Metals | No Comments

Knee RevisionSteel Standing is a book written by a parent’s adult child that became as a caregiver and advocate about metal allergies. Becoming a non-clinical researcher when a mysterious illness shrouds the parent’s worsening conditions, was never part of this adult child’s plan.

The day I was asked by my mother’s original orthopedic surgeon, named Dr. Doubter in Steel Standing … “What should I do?”… was the day I had a rude awakening.

At that moment I realized there weren’t any “magic tricks” or special “medical potions” in what I had apparently believed as more of a fantasy than a reality. For the first time, I saw a person versus a physician…  sincerely asking for help.

Please note: I have tremendous respect for physicians! It was my expectations that needed a reality check.

During our conversation (more details in Steel Standing), I was so thankful I had already begun my own research for any help and/or hope of learning what was the culprit in my mother’s health issues.

When Dr. Doubter asked that single question “What should I do?,” I handed him a copy of the clinical studies with answers from credible medical journals. The next appropriate tests to possibly diagnose my mother’s problem were listed in the journals. Scientists had written and documented cases just like my mother’s. What was there NOT to do?

He was visibly paralyzed by the sheer thought that my mother’s life could be comprised that her knee replacement “might” be the core culprit to her rapidly failing health. The knee replacement he had surgically placed in her once healthy body.

He didn’t know about metal allergies. I’m guessing he is more educated these days as the awareness is growing. However, we forgave Dr. Doubter and moved on. Some days I still have to seek peace in my heart when I recall how close to death my mother’s became due to so many skeptics. I am not a clinician, but I still believe strongly in our medical community because we crossed paths with many that did act! We kept our faith intact.

That is why this web site, the book, all the presentations and everything else has come to life since creating “Steel Standing” to educate others.

One question from a credible medical professional as a skillfully trained orthopedic surgeon inspired me to share what I learned.

Lesson Learned: Negatives actions can influence positive reactions!

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