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Muscle Disease from Metal Implants

Posts Tagged ‘orthopaedic’

Amputation?!?!

Monday, March 3rd, 2014 | Types of Metals | No Comments

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Recently I was told a lady in PA had repeated gone to her orthopaedic surgeon due to pain, soreness, over all fatigue, as lifelessness crept into her body over an extended period of time. Dire health issues stemmed after her knee replacement. She did not recall having any health issues prior to her Nickel-Cobalt-Chromium knee replacement.

The lady said her leg was starting to swell with a nasty rash and the pain was unbearable. Instead of the orthopaedic surgeon checking to see if the types of metal were the core issue of her declining health, he refused to do a knee revision. He did not believe the patient’s health issues were directly related to a severely infected knee after her replacement.

Her knee infection became so bad… the orthopaedic surgeon, in his professional opinion, instructed her that he was going to have to amputate her leg.

I have “repeatedly” stated Steel Standing’s support for physicians in attempts to share metal allergy stories directly related to joint replacements to help “educate” others.

This story absolutely broke my heart!!!

NOT everyone will experience metal allergies from surgical implants such as joint replacements, dental implants, plates, screws, wires, pacemakers, etc. But what if someone you loved WAS allergic to a metal implanted into their body and they slowly began to lose their quality of life/health? Based on personal experience, I would EVERY thing possible to help my Mother and she recovered! I pray everyone can recover.

PLEASE become more acutely aware of what is happening with metal allergy issues! Share information.

I did not read her medical file, nor am I a clinician. I can’t reveal any more information. But here are the facts shared: She had a TKR (Total Knee Replacement) with the same metals that were slowly draining my Mother’s life. She did not have any other health issues until she had a knee replacement. This lady lost a leg just above her knee although she repeatedly pleaded for help. Perhaps a second opinion was in order, but when people “trust” their doctors and are adamantly devoted to them, you pray their doctor knows best!

I didn’t ask if she had sought a second opinion. I was speechless and deeply saddened for her outcome.

Could her knee have been saved in this day and age of technology, testing and better monitoring as she expressed repeated pleas with pain and suffering?

C. Davis

Author of Steel Standing

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FDA Orthopaedic and Rehabilitation Devices Panel of the Medical Devices Advisory Committee Meeting Announcement

Sunday, November 10th, 2013 | Uncategorized | No Comments

FDA STILL DOESN’T GET IT! “TYPES OF METALS” is the correct answer!

(This is part of the long FDA announcement and meeting notes.)

Agenda: On December 12, 2013, during Session I, the committee will discuss and make reco…mmendations regarding the classification of spinal sphere devices. These devices are spheres manufactured from metallic (e.g., cobalt chromium molybdenum) or polymeric (e.g., polyetheretherketone) materials. They are intended to be inserted between the vertebral bodies into the disc space from L3-S1 to help provide stabilization and to help promote intervertebral body fusion. During the arthrodesis procedure, they are to be used with bone graft. These devices are not intended for use in motion-sparing, non-fusion procedures.

PLEASE NOTE the types of metals they are going to “suggest (dictate?)” for orthopaedic surgeons to place in the spine!

“Cobalt, Chromium and Molybdenum”

Chromium and Molybdenum are only 1 element away from being twins! That means double the trouble for metal inserts, especially in the spine area! Those types of metals almost destroyed my mom’s kidneys. Beware of what types of metals are placed in your body.

Chromium causes renal and digestive failure. Google it! Learn and share, please! The photo below is my mom’s left hip after her third revision with repeated metals of Cobalt-Chromium-Nickel.

Also, note: Approximately 30 percent (varies with dermatologists) of the general population are allergic to Nickel.

WHY USE Cobalt, Chromium and Molybdenum metals? Because ortho mfgs can make a boat load of money on inexpensive hardware that is an alloy and not pure! Guess that’s how they make their billions.

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Total Joint Replacement: What to ask?

Tuesday, November 5th, 2013 | Health Care In General, Inflammatory Myopathy, Types of Metals | No Comments

The following hyperlink will carry you to an AAOS site with good questions. http://orthoinfo.aaos.org/topic.cfm?topic=A00375

But there are some questions missing you might want to include in your list.

Does or did your orthopedic surgeon or dentist ask if you were allergic to metal, any types of metals? Known what metals are being placed in your body. This web site is constantly getting emails from those who already have metal implants, relate to the symptom as shared with my mother’s case, then recognize they are experiencing the same. ONLY then does it seem a patient will listen or ask question before allowing any type of metal placed in their body.

Please note: Not everyone is sensitive to metals! But what if you are one of the ones that are sensitive to Nickel? Cobalt? Chromium in metal implants should be marked off everyone’s list! It causes renal and digestive failure EVEN if you are NOT allergic to Chromium. Google the facts!

Patch testing is being referred to a great deal lately as shared by many of our followers. It seems most orthopedic surgeons are advising their patients to have a patch test which is a skin test with metals placed on your body for three days. Then if there are any red marks where the metal piece was placed, the dermatologists declares you have a metal allergy to that type of metal.

How is it possible for a skin/patch test to be more accurate than a blood test that will capture the blood culture which circulates where the metal implants are located?

It baffles me to hear orthopedic surgeons and dermatologists claiming patch testing is the end all, answer all to detecting metal allergies!

I’m not a clinician, but I witnessed my mother’s patch test, which her dermatologist allowed. Her patch test was too vague. That’s when we were referred to a MELISA blood allergy test. I saw the results from her MELISA test! It was definitive and clear cut. There was not any reason to doubt her blood allergy test results from an appropriate lab that is credible.

When a patient is told a blood allergy test is not credible, ask your doctor check his/her sources. Share the web site of that lab! Become educated and informed.

With all due respect, medical doctors appear leery of metal allergy blood testing. Why, I have to wonder. Is there a hidden agenda or is it because patients are complaining to doctors that are missing the connection to unrelated health issues caused by metal implants creating failed health over sometimes “a gradual amount of time” and others quickly discover failing health which directs links back to when the metal implant was surgically placed in the body.

It’s your body. It’s your health. Respect your doctors. However, don’t be afraid to get additional opinions. Do your homework!

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We didn’t know about metal in joint replacements? Did you?

Tuesday, July 23rd, 2013 | Inflammatory Myopathy, Types of Metals | No Comments

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No clue?!? Progress Prevails

Thursday, July 18th, 2013 | Inflammatory Myopathy, Types of Metals | No Comments

When I began conducting my own research, no one had a clue what could possibly be my mother’s culprit. Patricia’s odd symptoms were all over the board. She didn’t “fit” into a normal case of anything. No signs indicated a clear direction what was the cause of her health decline as her body became increasing worse.

After a muscle biopsy, she was diagnosed with Inflammatory Myopathy – thought to be ALS, also known as Lou Gehrig’s disease.  Mom was given “no hope” without any clues how myopathy could have developed in a healthy, vibrant and energetic woman.

Her medical history had been healthy for 68 years. She didn’t smoke, drink alcoholic beverages, and did not take illegal medications. She had never been exposed to environmental hazards while working for a power company. Literally, there weren’t any clues, signs or symptoms what was happening to her body.

Currently, Patricia is at 95 percent mobility and quality of life compared to a previous 30 percent with failing health. No one would have ever believed her muscle tissue would be able to regrow and she could regain her physical strength  – a first in the United States!

My speaking schedule has become increasingly busier since we have been sharing an awareness of the potential dangers of metal allergies. Physicians are also listening to become aware of odd symptoms in their patients with metal implants.

What was considered “no hope” with “no clues” is shifting towards an incredible progressive pace.

Lee and Trish

Dr. Lee Cowden, Chairman of the Academy of Comprehensive Integrative Medicine’s Scientific Advisory Board, discusses Patricia’s miraculous rebound from metal allergies which created a side effect of Inflammatory Myopathy.

 

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Metal “Allergies” – Nothing to Sneeze About

Tuesday, April 2nd, 2013 | Inflammatory Myopathy, Types of Metals | No Comments

When thinking of allergies, most are likely to think of skin allergies, seasonal changes due to plants or allergic reactions to animals. However, few people probably think of one of the most serious allergies known to man’s existence; metal allergies.

“Do you know the types of metals in your implants?”

It’s a question asked among the attendees at “Steel Standing” presentations. Most shrug their shoulders, unaware of the potential dangers lurking beneath their skin and muscle tissue if they’ve had metal implants such as joint replacements, pacemaker (outside casing), or have had dental implants with “alloy” posts. There is a huge difference between “alloy” metals and “pure” metals.

The microscopic metallic ions from the metals in joint replacements or other types of metal implants, attach themselves to the weakest area of an individual’s anatomy.  For example; metal allergies ignite “another” unrelated health issue appearing to be “unassociated” to the origin –  which is the “types” of metals used in the metal implant. Nickel allergies are high among the general population, but there are other metal allergies most may not think about.

There is a unique blood allergy test which will determine the types of metals offered on today’s orthopaedic market that an individual is allergic to.  Check your sources and be aware of what your options are when searching for a reliable lab. 

Gesundheit!

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Re: Metal on Metal Warning

Saturday, March 16th, 2013 | Inflammatory Myopathy, Types of Metals | No Comments

In my efforts to share views, news and perspective primarily related to metal implants, it’s not too often I discover which articles offer encouragement. The highlighted article in this weblog, “Re: Metal on Metal Warning” was a welcomed discovery from the American Academy of Orthopaedic Surgeons (www.aaos.org) spokesperson, Joshua J. Jacobs, MD, posted on BoneSmart.org

Previously metal replacements resulting in questionable medical cases with hip replacements, were lumped into one category. The following information should offer anyone affected by similar experiences, hope! Orthopaedic surgeons are starting to publicly recognize what’s happening with metal implants and muscle tissue damage.

One of the orthopaedic surgeons largest associations is now specifically referring to two different types of cases. A progressive move for defining metal hip replacement issues.

Also, Joshua J. Jacobs, MD, suggested, as quoted:

“In patients with metal-on-metal surface replacements, there is a direct correlation between serum metal levels and metal sensitivity determined by [lymphocyte transformation testing] LTT,” Jacobs said. “Current diagnostic methods, both patch testing and in vitro, do require more robust clinical validation, but it can be useful in pre-op screening for patients with in vitro metal allergies when there is a history of reaction to jewelry.”

The article also states:

“Based on case reports and device literature, Jacobs said that metal allergy exists and has been seen as a temporal association. It can have different presentations and many involve a rash. In some examples, patients suffer skin reactions after implantation of total joint replacement devices. In other cases, the reaction goes away after the implant is removed for nonunion or re-fracture, only to return after re-implantation. In my mind, those sorts of cases prove to me that this is a real clinical entity,” Jacobs said.

Using patch testing, 14% of the general population would be sensitive to nickel and 10% would be sensitive to cobalt and chromium. However, Jacob said that patch testing may be flawed because it may have no bearing on what is occurring happening in deep tissues.

“Metal-on-metal allergy is the cause of clinical symptomatology, such as pain and swelling,” Jacobs said. These allergies present as skin reactions such as dermatitis, or patients may have a history of allergy to jewelry. The responses to these allergies can present as stiff knees, pseudotumors, necrosis or unexplained pain,” Jacobs said.

CCD: The deep tissue issue is how the medical breakthrough, as depicted in “Steel Standing,” has successfully enlightened neurologists to review other muscle disease/disorder cases in patients with metal implants. Also, my mother used M.E.L.I.S.A. metal allergy testing vs. LTT.  For more information, to have a M.E.L.I.S.A. allergy test in the United States contact: info@neurorelief.com

Reference:
Jacobs JJ. Clinical manifestations of metal allergy. Adverse reactions to byproducts of joint replacements (AAOS/ORSI). Presented at the American Academy of Orthopaedic Surgery 2012 Annual Meeting. Feb. 7-11. San Francisco.

To read the complete article: http://bonesmart.org/forum/threads/metal-allergy-in-joint-replacement.13261/

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Photo: My Mother’s Reaction to Metal Allergies (I’d hate to see the inner tissue damage!)

Sunday, March 10th, 2013 | Types of Metals, Uncategorized | No Comments

What a sight! I think of pain, aching, and incredible soreness. This photo was after soft tissue damage from the “types” of metals creating a chaotic allergic reaction within her body. Her endurance level was high. My tolerance level was low. Views like this one continued to inspire me to share her story with a tremendous amount of information to HELP others!

If you don’t have any metal implants, then please purchase your copy of “Steel Standing.” It may help you to appreciate what you or someone you know – didn’t have to live through, if only pre-planning was a part of your health’s focus, particularly as an aging population lives longer in the US. If you have good or great health, please take a moment to reflect on how fortunate you are compared to most people. We certainly continue to do that each day! “Steel Standing” will inspire others to have hope as did my mother, Patricia. She is a walking miracle. Perseverance and determineation prevailed.
 

 

 

 

 

 

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What is Inflammatory Myopathy?

Thursday, March 7th, 2013 | Inflammatory Myopathy, Types of Metals | No Comments

The three main types of chronic, or persistent, inflammatory myopathy are polymyositis, dermatomyositis, and inclusion body myositis.

Muscle inflammation may be caused by an allergic reaction, exposure to a toxic substance or medicine, another disease such as cancer or rheumatic conditions, or a virus or other infectious agent. The chronic inflammatory myopathies are idiopathic, meaning they have no known cause. They are thought to be autoimmune disorders, in which the body’s white blood cells (that normally fight disease) attack blood vessels, normal muscle fibers, and connective tissue in organs, bones, and joints.

The chronic inflammatory myopathies cannot be cured in most adults but many of the symptoms can be treated. Options include medication, physical therapy, exercise, heat therapy (including microwave and ultrasound), orthotics and assistive devices, and rest. Inflammatory myopathies that are caused by medicines, a virus or other infectious agents, or exposure to a toxic substance usually abate when the harmful substance is removed or the infection is treated. If left untreated, inflammatory myopathy can cause permanent disability.

Source: http://www.ninds.nih.gov/disorders/inflammatory_myopathies/detail_inflammatory_myopathies.htm **
What is Inflammatory Myopathy?

“Muscle inflammation may be caused by an allergic reaction, exposure to a toxic substance or medicine, (or) another disease …” **

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When I read this information in 2009, I realized there was not a medical translation to encourage any improvement in my mother’s chances for a return to her quality of life after being diagnosed with Inflammatory Myopathy.

Her arms looked as if she were malnourished! Her legs were beginning to slow down as if she were walking with cement blocks. This was hard for my mother to endure because of her strong independent nature. And that made it harder for me as I watched her struggle while suffering physically and emotionally. Her “hope” was the strongest aspect of her entire journey.

By gaining knowledge and having hope, I was able to connect mother’s culprit which had been a silent killer. Once her metals which were made of irritating chemicals and severely inflaming her muscles (Inflammatory Myopathy) were revised/changed – her muscle tissue starting growing again!

This is the first non-clinical (means only one case) medical case documented in the United States linking Inflammatory Myopathy to metal allergies. Unfortunately, not everyone’s medical mystery is solved. We encourage you to keep your hope and continue to exhaust all possibilities!

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