Steel Standing Book

Muscle Disease from Metal Implants

Posts Tagged ‘metal sensitivity’

Out the ROOF Allergy to Nickel Results!

Friday, November 22nd, 2013 | Health Care In General, Inflammatory Myopathy, Types of Metals | No Comments

Where can a patient turn to when in need of a revision or a removal, due to potential metal allergies from: knee replacement; hip replacement; metal plate and screws; dental posts; rods used in spines; surgical clips; pacemakers; and many other metal implants? To find an answer is a daunting task!

NOT EVERYONE IS ALLERGIC TO THEIR METAL IMPLANTS.

But what about those that are?!?

Based the feedback from so many patients, we find appalling how many people are suffering from metal implants. I began writing Steel Standing to share my mom’s story as we learned her health troubles were stemming from her metal joint replacements. It became a mystery flipped to a medical breakthrough!

Soon, a web site was needed to help promote the book, share our ongoing presentations and now we are advocating for others in need.

Patient’s Doctor Dismisses Metal Allergy Testing Results!

A patient named Tina has a metal rod made from alloys such as Cobalt-Chromium-Nickel which was surgically attached to her spine. She lives in Utah and has not been successful in her many attempts to get a medical doctor of any specialty to listen to her ailments. 

Tina shared with me, ”The doctors are all at a loss. When I accidentally discovered your web site while searching for any clues what might be wrong with me, I realized after reading your mom’s story my health problems may be to be metal related. There is nothing else that could be causing so much pain and weakness with extreme fatigue.  What’s more important is that I did not have any of these crazy symptoms until after the metal rod was placed in my spine. It has gradually decreased my health. I’m only 37 years old.”

Tina contacted me through our web site seeking my advise based on being my mom’s experience and discovering a wealth of metal information regarding metal inserts/implants in the United Kingdom. She has repeatedly met with her orthopedic surgeon, begging for him to remove the rod since she said it is no longer needed. The orthopaedic surgeon continues to refuse to listen to her. Tina has also been unsuccessful to get another orthopaedic surgeon that specializes in spinal rods since the doctors in her area belong to the same medical network.

Her next decision was to have a M.E.L.I.S.A. blood allergy test to see if any of the types of metals in her rod could be causing an allergic reaction. Her report was shocking! I could not believe her orthopaedic surgeon did not attempt to help his patient when he saw the M.E.L.I.S.A. report! Nickel (as shown below) is “off the charts” at 13.7 in addition to other mild metal allergies.

 Tina's MELISA Test Illustration

 (Click on photo for larger view)

Now, look at Mom’s M.E.L.I.S.A. Report.

 PDH MELISA REPORT FOR WEB

 (Click on photo for larger view)

Tina’s Nickel Allergy Results: 13.7 

Mom’s Nickel Allergy Results: 3.1

In reviewing the chart/timeline I created below to illustrate my mom’s journey with Cobalt-Chromium-Nickel with Nickel being one of the HIGHEST of her metal allergies. It is amazing my mom survived with only 3.1 positive.

 Steel Standing Graph

 (Click on photo for larger view)

This was story was first shared on November 10, 2013.

This blog post was updated on November 22, 2013.

Nothing has been done due to health insurance conflicts.

-Christa, Author of Steel Standing

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Total Joint Replacement: What to ask?

Tuesday, November 5th, 2013 | Health Care In General, Inflammatory Myopathy, Types of Metals | No Comments

The following hyperlink will carry you to an AAOS site with good questions. http://orthoinfo.aaos.org/topic.cfm?topic=A00375

But there are some questions missing you might want to include in your list.

Does or did your orthopedic surgeon or dentist ask if you were allergic to metal, any types of metals? Known what metals are being placed in your body. This web site is constantly getting emails from those who already have metal implants, relate to the symptom as shared with my mother’s case, then recognize they are experiencing the same. ONLY then does it seem a patient will listen or ask question before allowing any type of metal placed in their body.

Please note: Not everyone is sensitive to metals! But what if you are one of the ones that are sensitive to Nickel? Cobalt? Chromium in metal implants should be marked off everyone’s list! It causes renal and digestive failure EVEN if you are NOT allergic to Chromium. Google the facts!

Patch testing is being referred to a great deal lately as shared by many of our followers. It seems most orthopedic surgeons are advising their patients to have a patch test which is a skin test with metals placed on your body for three days. Then if there are any red marks where the metal piece was placed, the dermatologists declares you have a metal allergy to that type of metal.

How is it possible for a skin/patch test to be more accurate than a blood test that will capture the blood culture which circulates where the metal implants are located?

It baffles me to hear orthopedic surgeons and dermatologists claiming patch testing is the end all, answer all to detecting metal allergies!

I’m not a clinician, but I witnessed my mother’s patch test, which her dermatologist allowed. Her patch test was too vague. That’s when we were referred to a MELISA blood allergy test. I saw the results from her MELISA test! It was definitive and clear cut. There was not any reason to doubt her blood allergy test results from an appropriate lab that is credible.

When a patient is told a blood allergy test is not credible, ask your doctor check his/her sources. Share the web site of that lab! Become educated and informed.

With all due respect, medical doctors appear leery of metal allergy blood testing. Why, I have to wonder. Is there a hidden agenda or is it because patients are complaining to doctors that are missing the connection to unrelated health issues caused by metal implants creating failed health over sometimes “a gradual amount of time” and others quickly discover failing health which directs links back to when the metal implant was surgically placed in the body.

It’s your body. It’s your health. Respect your doctors. However, don’t be afraid to get additional opinions. Do your homework!

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Questions to Ask Your Medical Provider

Thursday, September 12th, 2013 | Health Care In General, Types of Metals | No Comments

 

Be prepared before your next physician visit. Ask questions. Learn more about your health and your habits to better communicate with your medical provider!Web Site Ask Questions Clip Art copy

The Agency for Healthcare Research and Quality (AHRQ) provides the following list of 10 important questions to ask your medical provider.

 

 

 

 

 

    1. What is the test for?
    2. How many times have you done this?
    3. When will I get the results?
    4. Why do I need this surgery? (IF this is a metal implant, ask what types of metals will be used and request a metal allergy test.  An LTT or MELISA  lab tests are the ONLY tests widely known to test for ALL types of metals surgically used in today’s market.)
    5. Are there any alternatives to surgery?
    6. What are the possible complications?
    7. Which hospital is best for my needs?
    8. How do you spell the name of that drug?
    9. Are there any side effects?
    10. Will this medicine interact with medicines that I’m already taking?

Source: Baylor Health Care System, www.baylorhealth.com

 

 

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We didn’t know about metal in joint replacements? Did you?

Tuesday, July 23rd, 2013 | Inflammatory Myopathy, Types of Metals | No Comments

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No clue?!? Progress Prevails

Thursday, July 18th, 2013 | Inflammatory Myopathy, Types of Metals | No Comments

When I began conducting my own research, no one had a clue what could possibly be my mother’s culprit. Patricia’s odd symptoms were all over the board. She didn’t “fit” into a normal case of anything. No signs indicated a clear direction what was the cause of her health decline as her body became increasing worse.

After a muscle biopsy, she was diagnosed with Inflammatory Myopathy – thought to be ALS, also known as Lou Gehrig’s disease.  Mom was given “no hope” without any clues how myopathy could have developed in a healthy, vibrant and energetic woman.

Her medical history had been healthy for 68 years. She didn’t smoke, drink alcoholic beverages, and did not take illegal medications. She had never been exposed to environmental hazards while working for a power company. Literally, there weren’t any clues, signs or symptoms what was happening to her body.

Currently, Patricia is at 95 percent mobility and quality of life compared to a previous 30 percent with failing health. No one would have ever believed her muscle tissue would be able to regrow and she could regain her physical strength  – a first in the United States!

My speaking schedule has become increasingly busier since we have been sharing an awareness of the potential dangers of metal allergies. Physicians are also listening to become aware of odd symptoms in their patients with metal implants.

What was considered “no hope” with “no clues” is shifting towards an incredible progressive pace.

Lee and Trish

Dr. Lee Cowden, Chairman of the Academy of Comprehensive Integrative Medicine’s Scientific Advisory Board, discusses Patricia’s miraculous rebound from metal allergies which created a side effect of Inflammatory Myopathy.

 

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Nickel Allergy Patients Needing Coronary Stents

Monday, May 20th, 2013 | Types of Metals | No Comments

One of our Facebook followers shares the link below which gives medical research and through provoking insight for patients allergic to nickel.

Metal implants are not only joint replacements as other may think when it comes to metal being surgically placed in your body. Some examples are surgical clips, pacemakers, any type of metal screws, rods, dental posts, types of cement used in bone building or as an adhesive. However, do you think about stents used in the heart and what types of metals are being used in that product? 

http://www.cathlabdigest.com/articles/How-Should-We-Manage-Nickel-Allergy-Patients-Needing-Coronary-Stents

We urge you to research what goes into your body before implanted “unknowns” or metal alloys are used without your prior knowledge. We didn’t know about metal allergies and the damage metal ions can do to a human body. But we do now and we continue to share what we learned and appreciate others supporting our efforts to spread the awareness.

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Metal “Allergies” – Nothing to Sneeze About

Tuesday, April 2nd, 2013 | Inflammatory Myopathy, Types of Metals | No Comments

When thinking of allergies, most are likely to think of skin allergies, seasonal changes due to plants or allergic reactions to animals. However, few people probably think of one of the most serious allergies known to man’s existence; metal allergies.

“Do you know the types of metals in your implants?”

It’s a question asked among the attendees at “Steel Standing” presentations. Most shrug their shoulders, unaware of the potential dangers lurking beneath their skin and muscle tissue if they’ve had metal implants such as joint replacements, pacemaker (outside casing), or have had dental implants with “alloy” posts. There is a huge difference between “alloy” metals and “pure” metals.

The microscopic metallic ions from the metals in joint replacements or other types of metal implants, attach themselves to the weakest area of an individual’s anatomy.  For example; metal allergies ignite “another” unrelated health issue appearing to be “unassociated” to the origin –  which is the “types” of metals used in the metal implant. Nickel allergies are high among the general population, but there are other metal allergies most may not think about.

There is a unique blood allergy test which will determine the types of metals offered on today’s orthopaedic market that an individual is allergic to.  Check your sources and be aware of what your options are when searching for a reliable lab. 

Gesundheit!

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Muscle Weakness Strengthens Daughter’s Commitment

Saturday, March 23rd, 2013 | Faith, Health Care In General | No Comments

 

Trish and ChrisWhen I resigned from my full time job, the economy had not evolved into hard times. Now that my mother is getting better she has often asked me, “Do you ever regret giving up your life and work to help me?”

There is never any hesitation in my heart or mind when I reach out to hug and remind her that my current job is be with her. The other part of my job is to help others so no one else has to suffer or struggle as I watched her. That’s why I wrote Steel Standing.

It is hard to grasp that I actually wrote a book during the mysterious medical journey. the amount of care my mother needed was almost 24/7, which is far greater than just a full time job. To figure out what was wrong with my mother AND to know she is better plus writing her story book, really does amazes me.

Although, I have volunteered my time to primarily become my mother’s caregiver, the pay is better than I could imagine!

To be able to hug her is just indescribable. She’s alive! She’s not in an assisted living facility or nursing home where she was bound before she regained her health!

I cherish each day. I thank God for each day knowing our faith was the very foundation that keep us on a level playing field. We had an opportunity to do more, or not. We chose to do more and share the information.

The most difficult task has been trying to tell the world what’s happened and with little attention from the media. If the world never learns what we experienced, I still have my mother to hug.

She continues to have the strongest “can do” attitude, even in her weakest times. She’s kept me going! What a rewarding job helping someone else while they teach you how to live, love and listen! What a mother! What a lady! What a great gift!

What more is there in life than showing those you love tremendous support.  Remind them that they’re not alone!

When it’s all said and done, caregiving should happen before it’s needed.

That’s my spill for now.

Chris

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Re: Metal on Metal Warning

Saturday, March 16th, 2013 | Inflammatory Myopathy, Types of Metals | No Comments

In my efforts to share views, news and perspective primarily related to metal implants, it’s not too often I discover which articles offer encouragement. The highlighted article in this weblog, “Re: Metal on Metal Warning” was a welcomed discovery from the American Academy of Orthopaedic Surgeons (www.aaos.org) spokesperson, Joshua J. Jacobs, MD, posted on BoneSmart.org

Previously metal replacements resulting in questionable medical cases with hip replacements, were lumped into one category. The following information should offer anyone affected by similar experiences, hope! Orthopaedic surgeons are starting to publicly recognize what’s happening with metal implants and muscle tissue damage.

One of the orthopaedic surgeons largest associations is now specifically referring to two different types of cases. A progressive move for defining metal hip replacement issues.

Also, Joshua J. Jacobs, MD, suggested, as quoted:

“In patients with metal-on-metal surface replacements, there is a direct correlation between serum metal levels and metal sensitivity determined by [lymphocyte transformation testing] LTT,” Jacobs said. “Current diagnostic methods, both patch testing and in vitro, do require more robust clinical validation, but it can be useful in pre-op screening for patients with in vitro metal allergies when there is a history of reaction to jewelry.”

The article also states:

“Based on case reports and device literature, Jacobs said that metal allergy exists and has been seen as a temporal association. It can have different presentations and many involve a rash. In some examples, patients suffer skin reactions after implantation of total joint replacement devices. In other cases, the reaction goes away after the implant is removed for nonunion or re-fracture, only to return after re-implantation. In my mind, those sorts of cases prove to me that this is a real clinical entity,” Jacobs said.

Using patch testing, 14% of the general population would be sensitive to nickel and 10% would be sensitive to cobalt and chromium. However, Jacob said that patch testing may be flawed because it may have no bearing on what is occurring happening in deep tissues.

“Metal-on-metal allergy is the cause of clinical symptomatology, such as pain and swelling,” Jacobs said. These allergies present as skin reactions such as dermatitis, or patients may have a history of allergy to jewelry. The responses to these allergies can present as stiff knees, pseudotumors, necrosis or unexplained pain,” Jacobs said.

CCD: The deep tissue issue is how the medical breakthrough, as depicted in “Steel Standing,” has successfully enlightened neurologists to review other muscle disease/disorder cases in patients with metal implants. Also, my mother used M.E.L.I.S.A. metal allergy testing vs. LTT.  For more information, to have a M.E.L.I.S.A. allergy test in the United States contact: info@neurorelief.com

Reference:
Jacobs JJ. Clinical manifestations of metal allergy. Adverse reactions to byproducts of joint replacements (AAOS/ORSI). Presented at the American Academy of Orthopaedic Surgery 2012 Annual Meeting. Feb. 7-11. San Francisco.

To read the complete article: http://bonesmart.org/forum/threads/metal-allergy-in-joint-replacement.13261/

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Atlanta FOX News Interview

Sunday, April 8th, 2012 | Inflammatory Myopathy, Types of Metals | No Comments

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