Steel Standing Book

Muscle Disease from Metal Implants

Posts Tagged ‘metal implants’

Out the ROOF Allergy to Nickel Results!

Friday, November 22nd, 2013 | Health Care In General, Inflammatory Myopathy, Types of Metals | No Comments

Where can a patient turn to when in need of a revision or a removal, due to potential metal allergies from: knee replacement; hip replacement; metal plate and screws; dental posts; rods used in spines; surgical clips; pacemakers; and many other metal implants? To find an answer is a daunting task!

NOT EVERYONE IS ALLERGIC TO THEIR METAL IMPLANTS.

But what about those that are?!?

Based the feedback from so many patients, we find appalling how many people are suffering from metal implants. I began writing Steel Standing to share my mom’s story as we learned her health troubles were stemming from her metal joint replacements. It became a mystery flipped to a medical breakthrough!

Soon, a web site was needed to help promote the book, share our ongoing presentations and now we are advocating for others in need.

Patient’s Doctor Dismisses Metal Allergy Testing Results!

A patient named Tina has a metal rod made from alloys such as Cobalt-Chromium-Nickel which was surgically attached to her spine. She lives in Utah and has not been successful in her many attempts to get a medical doctor of any specialty to listen to her ailments. 

Tina shared with me, ”The doctors are all at a loss. When I accidentally discovered your web site while searching for any clues what might be wrong with me, I realized after reading your mom’s story my health problems may be to be metal related. There is nothing else that could be causing so much pain and weakness with extreme fatigue.  What’s more important is that I did not have any of these crazy symptoms until after the metal rod was placed in my spine. It has gradually decreased my health. I’m only 37 years old.”

Tina contacted me through our web site seeking my advise based on being my mom’s experience and discovering a wealth of metal information regarding metal inserts/implants in the United Kingdom. She has repeatedly met with her orthopedic surgeon, begging for him to remove the rod since she said it is no longer needed. The orthopaedic surgeon continues to refuse to listen to her. Tina has also been unsuccessful to get another orthopaedic surgeon that specializes in spinal rods since the doctors in her area belong to the same medical network.

Her next decision was to have a M.E.L.I.S.A. blood allergy test to see if any of the types of metals in her rod could be causing an allergic reaction. Her report was shocking! I could not believe her orthopaedic surgeon did not attempt to help his patient when he saw the M.E.L.I.S.A. report! Nickel (as shown below) is “off the charts” at 13.7 in addition to other mild metal allergies.

 Tina's MELISA Test Illustration

 (Click on photo for larger view)

Now, look at Mom’s M.E.L.I.S.A. Report.

 PDH MELISA REPORT FOR WEB

 (Click on photo for larger view)

Tina’s Nickel Allergy Results: 13.7 

Mom’s Nickel Allergy Results: 3.1

In reviewing the chart/timeline I created below to illustrate my mom’s journey with Cobalt-Chromium-Nickel with Nickel being one of the HIGHEST of her metal allergies. It is amazing my mom survived with only 3.1 positive.

 Steel Standing Graph

 (Click on photo for larger view)

This was story was first shared on November 10, 2013.

This blog post was updated on November 22, 2013.

Nothing has been done due to health insurance conflicts.

-Christa, Author of Steel Standing

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No clue?!? Progress Prevails

Thursday, July 18th, 2013 | Inflammatory Myopathy, Types of Metals | No Comments

When I began conducting my own research, no one had a clue what could possibly be my mother’s culprit. Patricia’s odd symptoms were all over the board. She didn’t “fit” into a normal case of anything. No signs indicated a clear direction what was the cause of her health decline as her body became increasing worse.

After a muscle biopsy, she was diagnosed with Inflammatory Myopathy – thought to be ALS, also known as Lou Gehrig’s disease.  Mom was given “no hope” without any clues how myopathy could have developed in a healthy, vibrant and energetic woman.

Her medical history had been healthy for 68 years. She didn’t smoke, drink alcoholic beverages, and did not take illegal medications. She had never been exposed to environmental hazards while working for a power company. Literally, there weren’t any clues, signs or symptoms what was happening to her body.

Currently, Patricia is at 95 percent mobility and quality of life compared to a previous 30 percent with failing health. No one would have ever believed her muscle tissue would be able to regrow and she could regain her physical strength  – a first in the United States!

My speaking schedule has become increasingly busier since we have been sharing an awareness of the potential dangers of metal allergies. Physicians are also listening to become aware of odd symptoms in their patients with metal implants.

What was considered “no hope” with “no clues” is shifting towards an incredible progressive pace.

Lee and Trish

Dr. Lee Cowden, Chairman of the Academy of Comprehensive Integrative Medicine’s Scientific Advisory Board, discusses Patricia’s miraculous rebound from metal allergies which created a side effect of Inflammatory Myopathy.

 

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Metal “Allergies” – Nothing to Sneeze About

Tuesday, April 2nd, 2013 | Inflammatory Myopathy, Types of Metals | No Comments

When thinking of allergies, most are likely to think of skin allergies, seasonal changes due to plants or allergic reactions to animals. However, few people probably think of one of the most serious allergies known to man’s existence; metal allergies.

“Do you know the types of metals in your implants?”

It’s a question asked among the attendees at “Steel Standing” presentations. Most shrug their shoulders, unaware of the potential dangers lurking beneath their skin and muscle tissue if they’ve had metal implants such as joint replacements, pacemaker (outside casing), or have had dental implants with “alloy” posts. There is a huge difference between “alloy” metals and “pure” metals.

The microscopic metallic ions from the metals in joint replacements or other types of metal implants, attach themselves to the weakest area of an individual’s anatomy.  For example; metal allergies ignite “another” unrelated health issue appearing to be “unassociated” to the origin –  which is the “types” of metals used in the metal implant. Nickel allergies are high among the general population, but there are other metal allergies most may not think about.

There is a unique blood allergy test which will determine the types of metals offered on today’s orthopaedic market that an individual is allergic to.  Check your sources and be aware of what your options are when searching for a reliable lab. 

Gesundheit!

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Muscle Weakness Strengthens Daughter’s Commitment

Saturday, March 23rd, 2013 | Faith, Health Care In General | No Comments

 

Trish and ChrisWhen I resigned from my full time job, the economy had not evolved into hard times. Now that my mother is getting better she has often asked me, “Do you ever regret giving up your life and work to help me?”

There is never any hesitation in my heart or mind when I reach out to hug and remind her that my current job is be with her. The other part of my job is to help others so no one else has to suffer or struggle as I watched her. That’s why I wrote Steel Standing.

It is hard to grasp that I actually wrote a book during the mysterious medical journey. the amount of care my mother needed was almost 24/7, which is far greater than just a full time job. To figure out what was wrong with my mother AND to know she is better plus writing her story book, really does amazes me.

Although, I have volunteered my time to primarily become my mother’s caregiver, the pay is better than I could imagine!

To be able to hug her is just indescribable. She’s alive! She’s not in an assisted living facility or nursing home where she was bound before she regained her health!

I cherish each day. I thank God for each day knowing our faith was the very foundation that keep us on a level playing field. We had an opportunity to do more, or not. We chose to do more and share the information.

The most difficult task has been trying to tell the world what’s happened and with little attention from the media. If the world never learns what we experienced, I still have my mother to hug.

She continues to have the strongest “can do” attitude, even in her weakest times. She’s kept me going! What a rewarding job helping someone else while they teach you how to live, love and listen! What a mother! What a lady! What a great gift!

What more is there in life than showing those you love tremendous support.  Remind them that they’re not alone!

When it’s all said and done, caregiving should happen before it’s needed.

That’s my spill for now.

Chris

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Re: Metal on Metal Warning

Saturday, March 16th, 2013 | Inflammatory Myopathy, Types of Metals | No Comments

In my efforts to share views, news and perspective primarily related to metal implants, it’s not too often I discover which articles offer encouragement. The highlighted article in this weblog, “Re: Metal on Metal Warning” was a welcomed discovery from the American Academy of Orthopaedic Surgeons (www.aaos.org) spokesperson, Joshua J. Jacobs, MD, posted on BoneSmart.org

Previously metal replacements resulting in questionable medical cases with hip replacements, were lumped into one category. The following information should offer anyone affected by similar experiences, hope! Orthopaedic surgeons are starting to publicly recognize what’s happening with metal implants and muscle tissue damage.

One of the orthopaedic surgeons largest associations is now specifically referring to two different types of cases. A progressive move for defining metal hip replacement issues.

Also, Joshua J. Jacobs, MD, suggested, as quoted:

“In patients with metal-on-metal surface replacements, there is a direct correlation between serum metal levels and metal sensitivity determined by [lymphocyte transformation testing] LTT,” Jacobs said. “Current diagnostic methods, both patch testing and in vitro, do require more robust clinical validation, but it can be useful in pre-op screening for patients with in vitro metal allergies when there is a history of reaction to jewelry.”

The article also states:

“Based on case reports and device literature, Jacobs said that metal allergy exists and has been seen as a temporal association. It can have different presentations and many involve a rash. In some examples, patients suffer skin reactions after implantation of total joint replacement devices. In other cases, the reaction goes away after the implant is removed for nonunion or re-fracture, only to return after re-implantation. In my mind, those sorts of cases prove to me that this is a real clinical entity,” Jacobs said.

Using patch testing, 14% of the general population would be sensitive to nickel and 10% would be sensitive to cobalt and chromium. However, Jacob said that patch testing may be flawed because it may have no bearing on what is occurring happening in deep tissues.

“Metal-on-metal allergy is the cause of clinical symptomatology, such as pain and swelling,” Jacobs said. These allergies present as skin reactions such as dermatitis, or patients may have a history of allergy to jewelry. The responses to these allergies can present as stiff knees, pseudotumors, necrosis or unexplained pain,” Jacobs said.

CCD: The deep tissue issue is how the medical breakthrough, as depicted in “Steel Standing,” has successfully enlightened neurologists to review other muscle disease/disorder cases in patients with metal implants. Also, my mother used M.E.L.I.S.A. metal allergy testing vs. LTT.  For more information, to have a M.E.L.I.S.A. allergy test in the United States contact: info@neurorelief.com

Reference:
Jacobs JJ. Clinical manifestations of metal allergy. Adverse reactions to byproducts of joint replacements (AAOS/ORSI). Presented at the American Academy of Orthopaedic Surgery 2012 Annual Meeting. Feb. 7-11. San Francisco.

To read the complete article: http://bonesmart.org/forum/threads/metal-allergy-in-joint-replacement.13261/

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Photo: My Mother’s Reaction to Metal Allergies (I’d hate to see the inner tissue damage!)

Sunday, March 10th, 2013 | Types of Metals, Uncategorized | No Comments

What a sight! I think of pain, aching, and incredible soreness. This photo was after soft tissue damage from the “types” of metals creating a chaotic allergic reaction within her body. Her endurance level was high. My tolerance level was low. Views like this one continued to inspire me to share her story with a tremendous amount of information to HELP others!

If you don’t have any metal implants, then please purchase your copy of “Steel Standing.” It may help you to appreciate what you or someone you know – didn’t have to live through, if only pre-planning was a part of your health’s focus, particularly as an aging population lives longer in the US. If you have good or great health, please take a moment to reflect on how fortunate you are compared to most people. We certainly continue to do that each day! “Steel Standing” will inspire others to have hope as did my mother, Patricia. She is a walking miracle. Perseverance and determineation prevailed.
 

 

 

 

 

 

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What is Inflammatory Myopathy?

Thursday, March 7th, 2013 | Inflammatory Myopathy, Types of Metals | No Comments

The three main types of chronic, or persistent, inflammatory myopathy are polymyositis, dermatomyositis, and inclusion body myositis.

Muscle inflammation may be caused by an allergic reaction, exposure to a toxic substance or medicine, another disease such as cancer or rheumatic conditions, or a virus or other infectious agent. The chronic inflammatory myopathies are idiopathic, meaning they have no known cause. They are thought to be autoimmune disorders, in which the body’s white blood cells (that normally fight disease) attack blood vessels, normal muscle fibers, and connective tissue in organs, bones, and joints.

The chronic inflammatory myopathies cannot be cured in most adults but many of the symptoms can be treated. Options include medication, physical therapy, exercise, heat therapy (including microwave and ultrasound), orthotics and assistive devices, and rest. Inflammatory myopathies that are caused by medicines, a virus or other infectious agents, or exposure to a toxic substance usually abate when the harmful substance is removed or the infection is treated. If left untreated, inflammatory myopathy can cause permanent disability.

Source: http://www.ninds.nih.gov/disorders/inflammatory_myopathies/detail_inflammatory_myopathies.htm **
What is Inflammatory Myopathy?

“Muscle inflammation may be caused by an allergic reaction, exposure to a toxic substance or medicine, (or) another disease …” **

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When I read this information in 2009, I realized there was not a medical translation to encourage any improvement in my mother’s chances for a return to her quality of life after being diagnosed with Inflammatory Myopathy.

Her arms looked as if she were malnourished! Her legs were beginning to slow down as if she were walking with cement blocks. This was hard for my mother to endure because of her strong independent nature. And that made it harder for me as I watched her struggle while suffering physically and emotionally. Her “hope” was the strongest aspect of her entire journey.

By gaining knowledge and having hope, I was able to connect mother’s culprit which had been a silent killer. Once her metals which were made of irritating chemicals and severely inflaming her muscles (Inflammatory Myopathy) were revised/changed – her muscle tissue starting growing again!

This is the first non-clinical (means only one case) medical case documented in the United States linking Inflammatory Myopathy to metal allergies. Unfortunately, not everyone’s medical mystery is solved. We encourage you to keep your hope and continue to exhaust all possibilities!

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Atlanta FOX News Interview

Sunday, April 8th, 2012 | Inflammatory Myopathy, Types of Metals | No Comments

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