Steel Standing Book

Muscle Disease from Metal Implants

Archive for the ‘Health Care In General’ Category

Out the ROOF Allergy to Nickel Results!

Friday, November 22nd, 2013 | Health Care In General, Inflammatory Myopathy, Types of Metals | No Comments

Where can a patient turn to when in need of a revision or a removal, due to potential metal allergies from: knee replacement; hip replacement; metal plate and screws; dental posts; rods used in spines; surgical clips; pacemakers; and many other metal implants? To find an answer is a daunting task!

NOT EVERYONE IS ALLERGIC TO THEIR METAL IMPLANTS.

But what about those that are?!?

Based the feedback from so many patients, we find appalling how many people are suffering from metal implants. I began writing Steel Standing to share my mom’s story as we learned her health troubles were stemming from her metal joint replacements. It became a mystery flipped to a medical breakthrough!

Soon, a web site was needed to help promote the book, share our ongoing presentations and now we are advocating for others in need.

Patient’s Doctor Dismisses Metal Allergy Testing Results!

A patient named Tina has a metal rod made from alloys such as Cobalt-Chromium-Nickel which was surgically attached to her spine. She lives in Utah and has not been successful in her many attempts to get a medical doctor of any specialty to listen to her ailments. 

Tina shared with me, ”The doctors are all at a loss. When I accidentally discovered your web site while searching for any clues what might be wrong with me, I realized after reading your mom’s story my health problems may be to be metal related. There is nothing else that could be causing so much pain and weakness with extreme fatigue.  What’s more important is that I did not have any of these crazy symptoms until after the metal rod was placed in my spine. It has gradually decreased my health. I’m only 37 years old.”

Tina contacted me through our web site seeking my advise based on being my mom’s experience and discovering a wealth of metal information regarding metal inserts/implants in the United Kingdom. She has repeatedly met with her orthopedic surgeon, begging for him to remove the rod since she said it is no longer needed. The orthopaedic surgeon continues to refuse to listen to her. Tina has also been unsuccessful to get another orthopaedic surgeon that specializes in spinal rods since the doctors in her area belong to the same medical network.

Her next decision was to have a M.E.L.I.S.A. blood allergy test to see if any of the types of metals in her rod could be causing an allergic reaction. Her report was shocking! I could not believe her orthopaedic surgeon did not attempt to help his patient when he saw the M.E.L.I.S.A. report! Nickel (as shown below) is “off the charts” at 13.7 in addition to other mild metal allergies.

 Tina's MELISA Test Illustration

 (Click on photo for larger view)

Now, look at Mom’s M.E.L.I.S.A. Report.

 PDH MELISA REPORT FOR WEB

 (Click on photo for larger view)

Tina’s Nickel Allergy Results: 13.7 

Mom’s Nickel Allergy Results: 3.1

In reviewing the chart/timeline I created below to illustrate my mom’s journey with Cobalt-Chromium-Nickel with Nickel being one of the HIGHEST of her metal allergies. It is amazing my mom survived with only 3.1 positive.

 Steel Standing Graph

 (Click on photo for larger view)

This was story was first shared on November 10, 2013.

This blog post was updated on November 22, 2013.

Nothing has been done due to health insurance conflicts.

-Christa, Author of Steel Standing

Tags: , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , ,

Total Joint Replacement: What to ask?

Tuesday, November 5th, 2013 | Health Care In General, Inflammatory Myopathy, Types of Metals | No Comments

The following hyperlink will carry you to an AAOS site with good questions. http://orthoinfo.aaos.org/topic.cfm?topic=A00375

But there are some questions missing you might want to include in your list.

Does or did your orthopedic surgeon or dentist ask if you were allergic to metal, any types of metals? Known what metals are being placed in your body. This web site is constantly getting emails from those who already have metal implants, relate to the symptom as shared with my mother’s case, then recognize they are experiencing the same. ONLY then does it seem a patient will listen or ask question before allowing any type of metal placed in their body.

Please note: Not everyone is sensitive to metals! But what if you are one of the ones that are sensitive to Nickel? Cobalt? Chromium in metal implants should be marked off everyone’s list! It causes renal and digestive failure EVEN if you are NOT allergic to Chromium. Google the facts!

Patch testing is being referred to a great deal lately as shared by many of our followers. It seems most orthopedic surgeons are advising their patients to have a patch test which is a skin test with metals placed on your body for three days. Then if there are any red marks where the metal piece was placed, the dermatologists declares you have a metal allergy to that type of metal.

How is it possible for a skin/patch test to be more accurate than a blood test that will capture the blood culture which circulates where the metal implants are located?

It baffles me to hear orthopedic surgeons and dermatologists claiming patch testing is the end all, answer all to detecting metal allergies!

I’m not a clinician, but I witnessed my mother’s patch test, which her dermatologist allowed. Her patch test was too vague. That’s when we were referred to a MELISA blood allergy test. I saw the results from her MELISA test! It was definitive and clear cut. There was not any reason to doubt her blood allergy test results from an appropriate lab that is credible.

When a patient is told a blood allergy test is not credible, ask your doctor check his/her sources. Share the web site of that lab! Become educated and informed.

With all due respect, medical doctors appear leery of metal allergy blood testing. Why, I have to wonder. Is there a hidden agenda or is it because patients are complaining to doctors that are missing the connection to unrelated health issues caused by metal implants creating failed health over sometimes “a gradual amount of time” and others quickly discover failing health which directs links back to when the metal implant was surgically placed in the body.

It’s your body. It’s your health. Respect your doctors. However, don’t be afraid to get additional opinions. Do your homework!

Tags: , , , , , , , , , , , , , , , , , , , ,

FDA Mandates ID for Implants (Again?)

Wednesday, September 25th, 2013 | Health Care In General, Types of Metals | No Comments

 

62-Hip Implants Cli ArtThe New York Times reported the FDA latest attempt in helping patients with implant failures. As quoted, ” The Food and Drug Administration published new rules on Friday that require most medical devices sold in the United States to carry a unique code, identifying the make, manufacture date and lot number. The codes will be stored in a publicly accessible database to help regulators, doctors and companies monitor safety issues with devices.”

To read the article in its entirely, click on the link:

http://www.nytimes.com/2013/09/21/business/fda-to-require-tracking-codes-in-medical-devices.html?emc=edit_tnt_20130920&tntemail0=y&_r=0

CCD NOTES: My mom’s implants had and have unique code, identifying the make, manufacture date and lot number and expiration date. How is the a new innovative idea? I want to believe patients best interest is being considered when announcements like this one are broadcast, but if you were not aware of metal implants ALREADY being identified, perhaps the general public would believe this to be an “excellent idea!”

She previously had a unnecessary pacemaker implanted, according to her cardiologist that gave her a second opinion after the first cardiologist stated, “Ms. Harton could easily go out into the ER parking and fall over without a pacemaker.” As a family were told this was a necessity for her to keep living at a function pace. It was not true, which I share in Steel Standing: Surviving Metal Allergies with medical proof to illustrate the trouble.

However, her explanted pacemaker (which I have in my possession) was also labeled with the Maker’s ID and a serial number, plus the tracking that occurs with pacemakers is required on a quarterly basis.

Since the article is shorter than my blog, I may be missing some information or misunderstood how incredible the FDA new requirement is for patients with implants.

The best news is the tracking system.

Of course, that mandate was imposed on all leading orthopaedic manufacturers to track and work with medical facilities to create a orthopaedic data registry in May 2011. I’m keeping an open mind to new information in hopes the tracking system will show FDA how many cases are not reported that fail due to the device.

I’ll be extremely grateful when the reporting system includes the failures due to the “types” of metals, as in my mom’s case.

For more information:

www.fda.gov

www.nytimes.com

Questions to Ask Your Medical Provider

Thursday, September 12th, 2013 | Health Care In General, Types of Metals | No Comments

 

Be prepared before your next physician visit. Ask questions. Learn more about your health and your habits to better communicate with your medical provider!Web Site Ask Questions Clip Art copy

The Agency for Healthcare Research and Quality (AHRQ) provides the following list of 10 important questions to ask your medical provider.

 

 

 

 

 

    1. What is the test for?
    2. How many times have you done this?
    3. When will I get the results?
    4. Why do I need this surgery? (IF this is a metal implant, ask what types of metals will be used and request a metal allergy test.  An LTT or MELISA  lab tests are the ONLY tests widely known to test for ALL types of metals surgically used in today’s market.)
    5. Are there any alternatives to surgery?
    6. What are the possible complications?
    7. Which hospital is best for my needs?
    8. How do you spell the name of that drug?
    9. Are there any side effects?
    10. Will this medicine interact with medicines that I’m already taking?

Source: Baylor Health Care System, www.baylorhealth.com

 

 

Tags: , , , , , ,

Muscle Weakness Strengthens Daughter’s Commitment

Saturday, March 23rd, 2013 | Faith, Health Care In General | No Comments

 

Trish and ChrisWhen I resigned from my full time job, the economy had not evolved into hard times. Now that my mother is getting better she has often asked me, “Do you ever regret giving up your life and work to help me?”

There is never any hesitation in my heart or mind when I reach out to hug and remind her that my current job is be with her. The other part of my job is to help others so no one else has to suffer or struggle as I watched her. That’s why I wrote Steel Standing.

It is hard to grasp that I actually wrote a book during the mysterious medical journey. the amount of care my mother needed was almost 24/7, which is far greater than just a full time job. To figure out what was wrong with my mother AND to know she is better plus writing her story book, really does amazes me.

Although, I have volunteered my time to primarily become my mother’s caregiver, the pay is better than I could imagine!

To be able to hug her is just indescribable. She’s alive! She’s not in an assisted living facility or nursing home where she was bound before she regained her health!

I cherish each day. I thank God for each day knowing our faith was the very foundation that keep us on a level playing field. We had an opportunity to do more, or not. We chose to do more and share the information.

The most difficult task has been trying to tell the world what’s happened and with little attention from the media. If the world never learns what we experienced, I still have my mother to hug.

She continues to have the strongest “can do” attitude, even in her weakest times. She’s kept me going! What a rewarding job helping someone else while they teach you how to live, love and listen! What a mother! What a lady! What a great gift!

What more is there in life than showing those you love tremendous support.  Remind them that they’re not alone!

When it’s all said and done, caregiving should happen before it’s needed.

That’s my spill for now.

Chris

Tags: , , , , , , , , , , , , , , ,